Support Dementia Caregivers

The week started great we went shopping at Old Navy and to the local pool even if her arm bandage prevented her from getting in. A power trip has arisen over the past few days about puling up depends before sitting on the living room couch. It is before 11am and I used the Alzheimer’s Association support line. The support lines are very nice about including us ftd caregivers as well. She also just threw up on herself while I was on the phone. The representative said maybe I want to call 911. He also gave me a website FTD Support Forum  and a number for Open House Senior Center here in the East Bay (510) 215-4340. Now I am looking for non government run programs as the ones that are loosing funding just make the whole support hunt disheartening. We fought to get her into a UCSF study only to find out that it began with a $900.00 examination. Ouch. This hurts badly enough without others joining in offering new disappointments.
She told my husband she would rather have me at work full time and him looking after her. I am reminding myself it is the disease that makes her say things like “I resent you”, “don’t tell me what to do”, and the OCD frequency with which she asks where her son is. Please give me the strength not to get angry. It is completely pointless and even damaging to all of us.